Olivia is a Cuban girl
three years old who suffers from multiple neurological problems; parents seek
contact with other families with similar situations in the world and with
experts from other countries who can contribute their opinions on treatment
alternatives. This is the information below:
Olivia case: difficult but
possible.
By: Osmel Almaguer.
Cuban doctors find no cure
for a girl who suffers from optic nerve hypoplasia (ONH). He has refused to
parents the possibility to consult other specialists outside the country.
Olivia de la Caridad, Cruz just three years old suffer, as a result of their disease, a neurological
disorder that has reduced their hours of sleep less than four, preventing her
from also vision. The disease is complicated by other illnesses as the unilateral
schizencephaly on the right side, the atrophy bilateral hippocampal, among others.
The parents of Olivia, a
Cuban girl stricken with optic nerve hypoplasia, recently reported its case
through independent media, the refusal of solution by the Cuban doctors, who
claim an effective treatment for this condition, is not known.
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Photo: Olivia with her
father
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"Doctors have
recommended us a visual therapy, which consists of making work with it as if it
were to be blind all life", says Erlinda Noris.
"[Specialists] people
have shown more interest, but they do not have the knowledge necessary to treat
such diseases, [...]" they have shown where have been able to reach, "says
the father.
Erlinda Noris and Juan
Cruz , who have accepted the conditions of the little girl from birth, have
been proposed contact with other parents and doctors abroad who have faced
similar situations and receive the help they as possible.
According to its own
research via the Internet, is known that in countries such as China and the
United States it has been implemented a treatment from stem cells, which some
patients have partially recovered vision.
Before the efforts of both
parents in different Cuban medical facilities, the answers have always been
negative: We propose to Ministry of Public Health the possibility that the
child receives treatment set that was part of the medical process. “Let us not
access doctors from other countries. Simply do not let us contact doctors of
the International Red Cross, the Spanish Red Cross or ONCE organization.
"We have gone to the
Ministry of Health , the Ministry of Education, ANSI , UNICEF , WHO , Caritas Cuba
and Caritas Havana , but not serve us
because we are a special case . We also come to church authorities and have
refused us because our case could give a bad image of the country” Cruz said.
Hypoplasia, according to
Wikipedia, is the name given to the arrested or incomplete development of an
organ or part of it. It refers to a number of cells, inadequate or below
normal.
Cuban doctors are unaware
of - hypoplasia - disease for which consultation with foreign specialists can
increase the recovery of Olivia. Countries as China and the EE.UU implement
treatments with stem cells.
While efforts are slowed
by the Cuban health authorities, the health of Olivia will continue to
deteriorate daily.
Source: Hablemos Press. Available at: http://www.cihpress.com/2015/04/caso-olivia-dificil-pero-posible.html#.VUI1Tmd0zcc
Please send information to: cubanmedicine@yahoo.com
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